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PostPosted: Thu Apr 05, 2012 9:41 am 
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Try to stay positive. At least your colonoscopy went okay.

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PostPosted: Thu Apr 05, 2012 11:17 am 
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PixarFan2006 wrote:
Try to stay positive. At least your colonoscopy went okay.



And if the biopsies come back normal, is very good, however then this past year I feel like I find myself back to square one, with no other doctor wanting to pursue such of anything, regardless of what test it is, I don't feel like the doctors in the Mattoon location trust me, and that a doctor and a patient should be equals and work together, it's not doubting the doctor, Doctors make mistakes. That doesn't mean it's horrible, it's called they are human.


A psychologist I talked to at carle told me that the doctor knows best, and when I told her about Patch Adams and that speech, the psychologist said well he knew what he was doing as he was a doctor.....and had the degree to say those things.


which I turn to WWE Superstar The Miz for logic or a real response that was going through my head. (although it's pretty sad when WWE makes more sense than a psychologist as a video metaphor)


<iframe width="560" height="315" src="http://www.youtube.com/embed/6vxiQ9JCKvE" frameborder="0"></iframe>

Maybe she needs to watch the movie again, and look into the real patch Adams, who ironically lives in Urbana where the main hospital of Carle is located an hour away

When I was on Jay Leno in 2005, most of you saw my unique "Talent". I did not have any excess fat at that age. Though I gained more and 1 year ago I weighed 480 (I'm Happy I lost the weight I have, but I drink soda, ice cream, I have lost that weight since they took off of my crohn's pill on that with no where near enough exercising to lose from 480 to 360. I plan to keep that weight off, though it's baffling to me how am I losing this. No exercise, hardly eating health. Also my muscles are now excess fat, and in the bathtub, I float. Literally, I float, when I turn the jets on in the bathtub, the water sweeps me up and float and I feel like I'm on a spin cycle for a washing machine.

I remember I use to go to the pool when I was a kid (age 12, I stopped going due to people picking on me for various things) and I got into the 12 feet end of water, and I didn't tread water, or try to swim or doggie paddle. I just floated standing up, as if I was standing in the water. Then I walked forward in the 12 feet end. My feet were not touching the ground, but if I just moved my leg and walked, somehow I walked in the water.....


The Crohn's pill they took me off, isn't always for Crohn's specifically. It's an anti-inflammatory pill, which works well for ongoing chronic pain or issues.

So now it possibly could be muscle thing somewhere, which could be making my irritable bowel (I have inflammatory too, which if it is in remission for sure, we'll more sure when those biopsy results are in.

Also since I have been losing weight, a new thing I do is I can pull my foot to rub my head or kick me lightly with it.....that gives me an idea, though come to think about it, there may be away to turn this mystery/negative into a positive idea.....(I will go to a website and submit what I can do, and possibly I could be somewhere that I was 7 years ago this September....you gotta have some humor, when talking to doctors about crap (Sometimes Literally, and some times not literally)

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PostPosted: Thu Apr 05, 2012 3:27 pm 
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You float? Wow. That sounds kind of fun, but also not good either!

You should excercise and eat healthy along with that soda and ice cream.

And did you say you can rub your head with your foot? Like you can bring your foot to your head? That is a talent!

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PostPosted: Fri Apr 06, 2012 1:47 pm 
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Disney Duster wrote:
You float? Wow. That sounds kind of fun, but also not good either!

You should exercise and eat healthy along with that soda and ice cream.

And did you say you can rub your head with your foot? Like you can bring your foot to your head? That is a talent!


Oh I do eat other food as well, my fiance has taught me to just try one bite of some food, and some of it and I have liked some of it and continue to try get my aspie brain and eat healthier.

Regarding the exercise, my fiance stepped on my foot by accident, so I'm in a boot due to it's broke. I still do things,,

The floating is weird, it's never been a problem before. though in swimming class the lifeguard said to swim down and touch the wall in 12 feet of water, I tried to swim down....I couldn't do it. Because I tried to swim down but it didn't work. They swimming pool class had a net, they told me to grab onto the pole part and they were going to get me down that way. I only got to 4 feet due. This was when I was in 6th grade.




Yeah that trick I discovered it this past March. apparently during the procedure when I fell asleep on my left side, my right arm somehow just bended in my neck and they called a code and someone had to hold my right arm/shoulder. I can do quite a few unique stretch moments.



The Biopsies results came back, everything is normal except for there is in one area some inflammation and are calling it Proctitis. So I'll be getting some stuff to help it. Although we learned the GI doctor didn't look where I was having pain of left side. It's not his fault though, he didn't know that was an area that was complicated since we just said whoever is more soon.

If you want to learn more about Proctitis , Google it.

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PostPosted: Sun Apr 08, 2012 12:54 am 
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I hope the treatment you get for your Proctitis works. Image

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PostPosted: Sun Apr 08, 2012 6:28 pm 
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Oh man, I looked it up and I'm really sorry you've got Proctitis! Well I will pray that gets help soon and also that a doctor finally looks at the right part of you that has the pain! :P

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PostPosted: Sun Apr 08, 2012 6:36 pm 
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Disney Duster wrote:
Oh man, I looked it up and I'm really sorry you've got Proctitis! Well I will pray that gets help soon and also that a doctor finally looks at the right part of you that has the pain! :P



Well, 13 years ago I was diagnosed with Crohn's, and we found the original report from 13 years ago, it says the same thing, Proctitis. So when my mom showed me the original report we both felt like a weight has been lifted off of our shoulders, due to people for 7 years have been crazy and made me feel confused and upset and sad. Now those doubts have gone away.


Hope I didn't break a Mirror

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PostPosted: Thu May 17, 2012 5:01 pm 
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Update Time






I saw the Gi at the end of April, and he ordered a blood test, and it took a couple weeks for it to be finished, It showed I Have Ulcertive Colitis. So now we can treat something, though I keep losing weight rapidly. One week I got weighed it said 352 a week later it said 341....my new primary doctor is concerned about that. Also I went to Saint Louis (for my Shrink in beginning of May,) on the way back to IL ,my back was hurting, and the pain has gotten very very worse. It's my Sciatica and my lumbar. It's very hard to get up. Tomorrow I go see some Spine people in Urbana. I have barely got any pain relief with any pills they tried. So it's quite possible they might admit me for pain relif, also it's been hard to eat or drink, Please Keep my Family and my Fiance and her family in your thoughts and/or prayer

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PostPosted: Thu May 17, 2012 8:09 pm 
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How awful, disneyboy. :(

I hope that your primary doctor will be able to treat your Colitis, and that the spine doctors will be able to lessen your pain.

Hang in there,

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PostPosted: Thu May 17, 2012 9:00 pm 
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Disney Geek wrote:
How awful, disneyboy. :(

I hope that your primary doctor will be able to treat your Colitis, and that the spine doctors will be able to lessen your pain.

Hang in there,


The GI Doctor will probably handle the GI Stuff, but they all will work together and all.

That's what I hope will happen

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PostPosted: Thu May 17, 2012 9:47 pm 
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I hope something good happens for you, especially for the pain. Keeping you in my thoughts/prayers. :(

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PostPosted: Thu May 17, 2012 9:56 pm 
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There's been a few nights in my prayers that I was thinking about how I hadn't heard about you in a while! Glad to hear they keep getting closer to fidning what's wrong and treating it! As usual, I'm prayin' for ya!

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PostPosted: Sat May 26, 2012 8:28 am 
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some more problems

The Spine Doctor, well, was quite a joke, at least the one I saw there

the lady doctor said she was overwhelmed and needed to step out of the room. This Lady didn't even look at me, didn't listen, and the paper report says that just as well though it says i was throwing a fit..... :brick:

She did order an MRI although there was confusion since I had an MRI in January, which we tried to explain that was that was not related to this matter. So My pain which points to Sciatica pain.

Today is the MRI in an hour from now keep my family in your prayers and thoughts.

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PostPosted: Sat May 26, 2012 11:05 pm 
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I wish you all the best for your MRI. Image

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PostPosted: Sun May 27, 2012 1:28 am 
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MRI went okay and we'll find out that info this coming week, though I still am having really really horrible pain. I might go to the ER tonight

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PostPosted: Sun May 27, 2012 2:36 am 
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You're in enough pain to go to the ER! Image

My thoughts are with you and your Family. :(

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PostPosted: Mon May 28, 2012 2:38 pm 
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Disney Geek wrote:
You're in enough pain to go to the ER! Image

My thoughts are with you and your Family. :(


It's about 2pm central time, i'm going to the ER.

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PostPosted: Mon May 28, 2012 3:32 pm 
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Good luck. :(

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PostPosted: Mon May 28, 2012 7:16 pm 
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I know this is a bit late (completely different timezones), but I really hope everything goes well. :cry:

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PostPosted: Mon May 28, 2012 10:53 pm 
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I hope everything goes well!!!!

It sounds to me like all the doctors you're meeting are having trouble knowing what's truly going on and that maybe your asperger's is having you seem uncoopertaive and make them say you're throwing fits or making stuff up (?) or don't know what you're saying (?) didn't they say stuff like that? And unfortunately maybe your family is having trouble explaining that to them...? I don't know. Maybe you should appeal to some specialists or psychologists to say what you've got and get those doctors to understand you and take you more seriously and finally help you the right way.

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